The MSUD Family Support Group is an international nonprofit organization dedicated to providing support, education, and advocacy for individuals and families affected by Maple Syrup Urine Disease (MSUD). Whether you’re newly diagnosed, living with MSUD, or caring for a loved one, you are not alone.
We provide support, personal contact, encouragement, knowledge, and hope for those affected by MSUD. The group unites MSUD families, medical clinicians, and researchers into a community seeking to improve the lives of individuals with MSUD through day to day support, improved treatments, and the search for a cure for MSUD
Join a growing global network of patients, caregivers, clinicians, and researchers who are working to improve outcomes and build community.
You can donate securely through our website using a credit card, PayPal, or a check. Every contribution, big or small, makes a difference.
Yes, we are a registered nonprofit organization. All eligible donations will receive a receipt for tax purposes.
We are almost entirely funded by donations. We rely on these donations to fund our newsletters, biennial symposium, our research program and other activities. We sincerely appreciate any donations you may choose to make.
Absolutely! We welcome volunteers both locally and remotely. Contact us to learn more!
Executive Director, MSUD Family Support Group
President of the Board of Directors
Secretary, Board of Directors and Research Lead
Member, Board of Directors and Advocacy Lead
Treasurer, Board of Directors
