The American College of Medical Genetics and Genomics (ACMG) web site maintains a database of metabolic clinics across the United States. These clinics are usually capable of providing services to MSUD patients.
To find a clinic near you, first access the ACMG web site by clicking here or anywhere on this map, then click on the icon for the clinics that are located near you.
Finding the Right Specialist
When contacting a clinic, ask specifically if they have experience treating Maple Syrup Urine Disease (MSUD).
Look for a metabolic specialist or geneticist who has experience with MSUD patients.
Many clinics have metabolic nutritionists who can help with dietary management of MSUD.
Need Help Finding a Clinic?
Contact us for assistance in finding a metabolic specialist in your area.
NORD Centers of Excellence
Learn about the National Organization for Rare Disorders (NORD) designated Centers of Excellence for rare disease care.